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What Is EB?
In EB's Most Severe Form, Many Babies Don't Live To Celebrate Their First Birthday
EB (epidermolysis bullosa) is a genetic blistering skin disease that causes a baby’s skin to blister and peel off creating extreme pain and death in its most severe forms. EB is caused by a gene mutation that creates a very weak bond between the baby’s skin layers in the epidermis and dermis. Friction, pressure, and heat on the skin causes blisters and skin loss. Even a hug from mom or dad can cause life-threatening blisters and skin loss, and extreme pain that can’t be controlled with our best medicines. EB affects both genders and all ethnicities equally. It is not getting the attention it needs to find a full-body cure.
Love
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Compassion
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Charity
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The blister wound on his leg is the worst without any skin from his ribs all the way down to the tips of his toes." The father’s depressed plea rang out. His son Baby John, not yet three days old, lay suffering in a bed with severely painful blisters and gaping wounds that threatened his very life. These were bloody blisters and wounds the father could neither heal nor stop from emerging on his son’s tiny face and body time and time again. Time was running out. When Baby John was born, his parents learned he had rare EB Blistering Skin Disease. They had never heard of the disease. Now immersed in their own daily struggle and nightmare, they are all too familiar with the heartbreak that accompanies it: constant cries of pain, emerging blisters on the baby’s face, head, chest, arms, hands, fingers, legs, feet, and toes, a lack of weight gain due to bloody mouth, tongue and gum sores, and, reopened and bleeding wounds at every painful bandage change. And, for Baby John, the disease is getting worse every day. "It's so painful to see as parents. I have to hold Baby John down so my weeping wife can change his bandages while we watch him bleed, hurt and cry. We feel helpless and numb."
Baby John’s father said he is now in a waiting game—waiting to see what toll this disease will take on his son next. His blisters, pain, and skin loss continue putting his life at risk. His toes have fused together. At No Baby Blisters, we are working tirelessly, so that what comes next for Baby John and his family is a cure. Baby John and the other 500,000 children suffering from EB around the world deserve a life free of pain and full of hope. “We are praying for a miracle because he's crying in pain. A cure is necessary for all babies suffering from EB’s cruel pain,” said Baby John’s father. "I will do everything possible to cure my son. I got a second job now working 16 hours a day to help pay the medical expenses. I'm looking forward to No Baby Blisters help and close interest in my son's pain relief and cure."
EB disease is terrifying. Please help any way that you can. Positive life-saving work is already being done with your help until we find a full-body cure. Let us continue to help Baby John and others like him. Finding a life-saving cure is urgent. Thank you for your compassionate, merciful donations. Our God-given Mission is to save the sickest, most medically neglected suffering in severe pain with terminal diseases. Their lives depend on your loving donations. If you can donate Monthly, it will help babies like John never run out of severe pain medicine, life-saving bandages, antibiotics, wound-healing nutrition, and medical care. Monthly donations will also provide critical funding to accelerate our expert, innovative medical research for a full-body cure for EB disease and other devastating diseases. Thank you for any help you can give!
Your Donations Literally Saves Lives
Help us rescue EB babies from the terrible pain and death caused by EB. Mutated genes cause the skin to blister off resulting in extreme pain, infection, scarring, amputations, and death. A full-body cure is urgently needed. *Pictured is No Baby Blisters' spokesperson Baby Mirachael
Our Philanthropist
Aaron Tabor, MD, Founder of No Baby Blisters, is an NIH-funded skin researcher. He is also the Founder and CEO of GENIE Therapeutics, a biotechnology company developing cures for skin scarring, pigmentation and wrinkles.
TO SAVE THE FORGOTTEN, MEDICALLY NEGLECTED CHILDREN, I FOUNDED NO BABY BLISTERS CHARITY.
GREAT NEWS! You can save our innocent, forgotten and medically neglected children from miserable, painful daily lives by donating as little as $3 a month. Any amount makes a huge impact.
Our good-hearted, compassionate, and loving community of Monthly Donors are noble guardian angels of mercy for the forgotten, medically neglected children. Working together, we guard the lives of the sickest, most disadvantaged children in the world struggling in pain to stay alive.
We are committed to do everything possible to NEVER let them run out of severe pain medicine, life-saving surgeries, medical supplies and wound-healing food that reduce their pain, suffering, and death.
URGENT NEED FOR MONTHLY DONORS TO SAVE LILY'S LIFE!
Because Lily's only hope is good-hearted Donors just like you, will you become Lily's 'Guardian Angel' right now to reduce her severe pain and help save her life by donating Monthly? If you are already a Monthly Donor, thank you.
Click to choose a Monthly donation plan to save Lily and so many others, and join more than 500,000 loving, compassionate Donors!